Cake and chemo - the rematch!

You'll all be pleased to hear that yesterday was a much less disastrous day than Tuesday seemed to be! The only thing that tried to put a dampener on things was my persistent headache that ibuprofen and paracetamol couldn't shift! It turns out that when you are given cetuximab on its own it can cause a headache! Although I did have a dose of cetuximab on its own back in May, it's likely that there would still have been some of my other chemo drugs in my system, so no headache then. Anyway, with getting the oxyplatin and the 5FU yesterday afternoon the headache has just about gone! Yay!

Thankfully, all went straight forwardly at the hospital yesterday afternoon and I am now all hooked up to condom bottle number 7 of 10! I have it connected until tomorrow afternoon and have quickly gotten used to it hanging around again!! Thankfully, so far the side affects from the chemo have been minimal - at the moment I can drink room temperature drinks and don't have to clean my teeth in warm water. I'm taking my anti nausea meds as I hate feeling sick - thankfully not felt that way yet! I did get a quite numb right ear when I went out for a walk with mum this evening though - funny how it's always been my right ear that is affected first!! Hummm

Anyway, as I mentioned, mum is here now. It's been shift change day with sis having to go back home so she can go to work tomorrow. Dad bought mum up this afternoon and then took my car back to their house so that he can get it MOT'd tomorrow! Mum and I are then heading back for the weekend after I'm done at the hospital tomorrow afternoon. Thanks so much to you all, sis, mum and dad, for all the too-ing and fro-ing you are doing for me!!

Speaking of sis, the poor thing had to spend her birthday coming to chemo with me rather than meet up with her friends. Thanks again Sarah! To make it up to her I let her choose the take away for dinner!! Pizza was consumed!! Then it was cake time!! I had made her a New York style baked cheesecake from the original cheesecake recipe in the Junior's cookbook. Junior's is a chain of cheesecake restaurants in New York City that Sarah and I fell in love with when we were there for my 30th! This recipe calls for nearly 1kg of full fat Philadelphia cheese, among other naughty things!!! Well, thankfully even after my disasters whilst making it, it tasted good in the end!! We haven't quite finished it!! ;-)

Today, whilst supervising shift change I've been enjoying watching the Paralympics - truly inspirational!! I really loved the opening ceremony last night, especially seeing all the colourful outfits worn by the competitors - mexico certainly won that one!! I'm looking forward to vegging out and watching the games, and then I can plan my next mini adventure gold postbox tour!! Go Paralympic GB!!

Anyway, just to finish off with, here's a photo of the cake!

Night all

Cake and chemo - not quite according to plan!

I had two things to do today - make a baked New York style cheesecake ready for my sister's birthday tomorrow and go to the hospital to have my first cycle of chemo. Well, like all my best laid plans, neither of these things went quite to script!! Grrr

Cheesecake first ... The recipe told me to make the sponge base, cook it and then let it cool before adding the cheesy topping. Well I cooked it for the time it said and left it to cool. However, when I started to spoon the cheesy topping on it just sank through the sponge - oops! Anyway, I put the base back in the oven to cook a bit longer and then obviously had to let it cool again. On the second attempt, the cheesy topping sank a little bit into the sponge again but I had to carry on as it needed to bake again for over an hour and I only had that time before I had to leave for the hospital!!! I suspect we may have a marble effect with the sponge and cheese all mixed up when we come to cut it and eat it!! I just hope it tastes ok!!!

Well, onto the chemo saga!! My sis and I arrived on the chemo ward to be told I needed to go for a chest X-ray as the PICC wasn't in the right place!!! I explained that I had been through all this already and had another PICC put in correctly (see earlier post). Anyway, the nurses explained that they couldn't give me any chemo unless I had another X-ray today and the doctor signed off on it! So off to X-ray I went again! The receptionist was surprised to see me again, after all this was to be my 4th X-ray in a week!! Well, after a bit of a wait and then the X-ray, I went back up to the chemo unit. Obviously the X-ray showed all was fine because after about 45 minutes I was hooked up to my cetuximab (the mouse drug). Now, this is when the first hints of something not being quite right showed themselves. Normally, the three drugs I am on (cetuximab, oxyplatin and 5FU, aka the condom bottle) all get sent up from pharmacy at the same time and then stored in the fridge on the ward until I'm ready to have them - they go on one at a time which is why a chemo session takes a minimum of 5 and a half hours. Anyway, sometimes if the pharmacy hasn't quite finished making up the drugs, they just send up the first one, with the others following. This is what appeared to have happened today. However, when the nurse called the pharmacy to check, she was told that only the cetuximab had been prescribed!! Hummm. It turns out that my consultant had the day off today so they couldn't check with her. The next step was to get my notes from the file room and check them. Alas, all my consultant had written in there was that chemo was to start today and she didn't specify which drugs!! Ok, so next I spoke to the oncology registrar on duty and told her that my consultant had suggested to me when I saw her on clinic a couple of weeks ago that I was to have all the same drugs as earlier this year. Thankfully the registrar thought this was most likely so off she went to prescribe the oxyplatin and 5FU. However, it was approaching 6pm by this time and the day unit was winding down for the day and it was going to take at least 2 hours for pharmacy to make up the drugs!! As a result we came home - the cetuximab infusion had finished by this point. I have to go back tomorrow to have the other drugs. It wouldn't really be a problem but I'd stupidly booked my car in for an MOT on Friday morning back near my parents house 100 miles away!! This has to be rethought as I will now have to go back to the hospital on Friday to get my condom bottle disconnected!! How stupid of me to make plans whilst I'm on chemo!! Doh!!

Anyway, here's hoping tomorrow will be a better day, especially as it's Sarah's birthday!!

Night all

Xxx

My mini adventure

Today I have been on a mini adventure - alas it wasn't in a Mini (car) but via the delights of London buses and trains (does anyone else remember those adverts for Mini's - the Mini Adventures??). Anyway, I decided that I wanted to do something fun on my last day before chemo starts again tomorrow. I found a website that shows where all the gold postboxes are in the country (www.goldpostboxes.com) and it turns out that there are (currently) 6 in south-west London. Hopefully the Paralympians will do well in the coming couple of weeks and add more. Well, with the locations pinpointed I then planned my day using the trusty TfL Journey Planner. I decided to start with Pete Reed's postbox outside Chiswick Town Hall. I jumped on the train to Chiswick and then the E3 bus. I was planning to walk from the station to the town hall but as I got off the train, the heavens opened. Now of course I should have known this was going to happen, but I'd somehow missed this part of the forecast and left my umbrella at home, so off on the bus I went!! Here's Pete's postbox: 

So, having found the postbox I bought an umbrella and went to catch the bus (the 237) to my next destination - Isleworth. Just up the road from Isleworth station I found the first of Mo Farah's gold postboxes, to commemorate his 10,000m gold medal. Here it is: 

My next visit was to Mo's other postbox, commemorating his 5,000m win. This one was located in Teddington, so I caught the train down from Isleworth, via Twickenham. Here's Mo's second gold postbox: 

OK, so I was now half way through my list of postboxes. The next destination was Wimbledon, where two postboxes could be found, so it was back on the train. Just up the road from the station was Sophie Hosking's gold postbox: 

Then came the climb up the hill to Wimbledon village and then back down the other side of the hill to the All England Club. It was during this trek that I discovered that the blisters I got yesterday (from trainers I have had for years!) were not as well protected as I had hoped by the blister plasters - ouch!!! Anyway, I was very grateful when I found Andy Murray's gold postbox outside the All England Club. Here it is: 

Now, with my blisters, my plan was to get the bus back to Wimbledon station and then the train down to Cheam for the last postbox of the day. However, the bustracker app on my phone told me that the next bus was in 25 minutes! I'm not really one for waiting around so decided that the feet could hold up to walking back up the hill to Wimbledon village where I hoped that there would be more bus options. Typically, as I got about 20m back up the road the bus that I was told was 25 minutes away went past!! Oh well! Once back in Wimbledon village I caught the number 93 bus. When I saw that the destination of the bus was North Cheam I decided to stay on the bus through to there rather than get off at Wimbledon station and get the train. Once I got to the end of the bus route, I walked down to Cheam and found my final postbox - that commemorating Joanna Rowsell's win in the team pursuit. Here it is: 

After taking this snap, it was time to walk to Cheam station and catch the train home!! So, after 5 and a half hours, 3 buses and 5 trains I had visited the 6 gold postboxes on my mini adventure! I had also seem many parts of London that I've not been to before. Oh, did I mention that having bought that umbrella by Chiswick Town Hall, it had stopped raining by the time I got to Isleworth and remained dry for the rest of the day!! Typical! Never mind. I am now the proud owner of another black folding umbrella which will no doubt end up being left on a bus or train or in a pub somewhere in the future!!

I am now resting my poor feet before enjoying my final ice cream for a couple of months - cold sensitivity comes back tomorrow afternoon with my oxyplatin infusion. And then I have to also prepare for a certain sister's birthday on Wednesdy!! (I don't think she reads my blog - gets enough of me without it - but I'll leave out any birthday info until afterwards just in case).

Oh, check out these fun prints http://www.stuartsoriginals.com/cities.html I saw the London - Sporting City and London - World City prints in a gallery window in Wimbledon and thought they were great! (can I find somewhere to hang one, let alone justify buying one!!?? Hummmm)

Anyway, bye for now folks! No doubt the next post will be back about the joys of chemo!!

Take care

xxxxx

Oh cripes!

I've just had a glass candle explode! (obviously the candle was made of wax but it was one of those that is in a glass, if you know what I mean). Typically, it exploded in the lounge between me and the cupboard where the vacuum is kept and I had bare feet!! (rolls eyes). Anyway, I picked my way across and I think I've hoovered all the little bits up. At least it was one of my cheap ikea candles and not one of my nice ones - maybe there's a tip in there - watch out for cheap Swedish candles!!

Anyway, apart from that excitement, I've had a really lovely day, and no sis that's not because you went home! ;-) hahaha! No, it's because I met up with my great friend Janey, her husband and little boy. Thanks so much guys for meeting me and for my tea and cookie! It was really lovely to see you, and to have a cuddle with Oscar (that's her son not her husband!)

I've just watched Faster, one of my Love Film films. Didn't really enjoy it as its not my usual cup of tea. I'm not really sure how it ended up on my list. Didn't even have a fit actor in it! ;-)

It's sad to hear that Neil Armstrong has died. Although I wasn't born when he took his famous small step, I have always been fascinated by space travel - as a kid I remember wanting to be an astronaut! Space Camp will always have a special place in my 80s film loving heart! I can still sit through Apollo 13 and The Dish over and over again without getting bored! This evening I've read this quote from Neil Armstrong a few times and I think it sums things up for me on my current adventure:

"I believe that every human has a finite number of heartbeats. I don't intend to waste any of mine"

RIP Neil Armstrong

Xxxx

Pre-chemo jobs done

Well, I think they are all done anyway! I've been to have a dental checkup - all fine. I've made sure I'm stocked up on all the lotions and potions I need that the hospital does not provide, eg super strength moisturiser and gentle shampoo (thanks Lucy!) and this morning I went to get my hair cut and coloured. With the drug combo I'm on for chemo my hair thins but I'm lucky that I've always had a lot of hair and so ive never had any bold patches. My eye lashes fell out a few weeks after chemo finished last time tho - saved a few £ on mascara for a while there!! With my hair, unfortunately the grey hairs always remained stubborn and only the grey ones fell out! Typical!! Anyway, with only having (hopefully) 8 weeks of treatment I am hoping that having had my hair coloured this morning I'm hoping that not too much grey will show through before I can get it coloured again in October after treatment! We'll see!!!

Yesterday I met my friend Lucy for a bite to eat - we went to the newly opens Whole Foods Market just off Piccadilly. It was great to have a mooch around and the food was yummy! I would have loved to have stocked up with lots of lovely organic products if the ££ and arm strength (to carry it all) would allow!! I was surprised to see that some of the fresh fruit was grown in the USA! Surely the transportation costs and logistics would make it more feasible to source produce from the UK?! Anyway, still a great shop to mooch around.

Have a fun weekend everyone! Don't forget the waterproofs!!

Xxx

Be gone curse!

Well another afternoon was spent at the hospital today! It turned out from X-ray number 1 that the end of my PICC line hadn't flipped down into the correct position overnight. This meant another trip to venous access - why is it at the other end of the hospital to the X-ray department!!??!! Anyway, we got there to be told that there would be an hour wait. Mum and I then decided to go and get a drink from the cafe and sit outside rather than remain in the waiting room. (Yes, we'd decided to risk just mum coming with me again - curse be damned!!) On returning to venous access, I was taken through. The original plan was to insert a guide wire through the line they'd put in yesterday and then remove the line and thread another line through over the guide wire and hopefully into the correct position. Well, best laid plans and all that - the nurse practitioner pulled the PICC line out too far to be able to put a guide wire through - she was only meant to retract it a few cm but got carried away and pulled out 36cm of the 40cm they'd put in and as my veins were so deep it had popped out of the vein (they could tell this when they inserted the guide wire and it made me cry out in pain - it's not meant to hurt!). Anyway, the next plan was to start again from the beginning. Oh well!! Luckily the nurses took pity on me and let me have some cold spray on my arm to numb my arm before they injected the stingy local anaesthetic, normally reserved for the children!! :-) it worked a treat, although i'm not sure it would be very pleasant if I was cold sensitive from oxyplatin! Well, the second line went in ok and this time they used ultra-sound on both sides of my neck to check that the line hadn't gone astray again! Apparently, they hadn't seen in years what happened yesterday! I must be special!! Hahaha

Well, although the nurses in venous access were confident that the line was in the right place, off to X-ray we went again to check! We certainly clocked up the steps today. Another gown was put on and X-ray number 2 of the day was done! This time the radiographer thought the line was in the right place but he wasn't confident enough to let me go home without me being seen by venous access again!! High Ho high Ho it was off back across the hospital again!! Grrr! By the time we'd got back the nurse had looked at the X-ray image and thought all was fine so I could go home!! At last!! Although it was a bit of a faff having to go back again today, Maria, the nurse practitioner who supervised yesterday and today, was great - keeping me distracted with chatting about all sorts of random things, from why the weather is so changeable here compared with her home in the Philippines to how to curl your eyelashes with a pen!! It was great! :-)

Anyway, hopefully that'll be it for hospital visits until Tuesday - chemo day!! Now I'm going to enjoy my free days with my friend, the PICC, back in my arm. Pity the weather looks like sticking with the rules of a British bank holiday - don't forget your brollies if you're heading out and about!! ;-)

Take care y'all!

Xxxx

The curse strikes again

I really should know by now not to go to hospital with just mum - something always goes wrong! Well, today we went to get my PICC line put in ready for chemo next Tuesday. Anyway, all seemed to go fine as far as I could tell and I didn't feint!! I had the chest X-ray to check that the line was in the right place but unfortunately it wasn't. Instead of going up my right arm, across the top of my chest and towards my heart it goes up the vein on the left hand side of my neck! Oops! Apparently in 80% of cases in active people the line will flip into the correct position thanks to gravity and movement. Hopefully this will happen with me. I am heading back to the hospital tomorrow to have another chest X-ray to check it has. If not, I'll have to either have the current line fiddled with to get it in the right place or have another line in put in. Fun fun fun!! Oh well, it's better to have a PICC line in rather than have to have needles every time I have chemo and blood tests!

In other news, I had a lovely day on Saturday. It started with meeting my friend from uni, Anne-Marie, for lunch and an afternoon relaxing in St. James' Park. Thank you so much for coming up to London to see me! I'm so lucky that my friends are willing to come to see me, with Anne-Marie this week and Sarah coming from Plymouth a few weeks ago.

On Saturday evening I met with friends in Richmond to celebrate Sam's 30th birthday with a surprise party! We were thankful to be able to escape from the heat of the pub onto the Green which had turned into a big, communal beer garden for the surrounding pubs!! We did manage to have cake in the pub though, although the cake had melted to about half it's height!! Hahaha! Two of the balloons that we'd blown up popped in the heat as well!! The other advantage to sitting on the Green was that we could have a chip supper from the chippy down the street!! :-)

Last night I met some of my friends from work after their training day for a good catch up over a few (soft) drinks in the new beer garden that one of the local pubs had opened. It was great to see them and hopefully I'll see them again soon.

One final mention must be to baby Callan George - welcome to the world! Congratulations to Nikki, Ian and Ewan on the new edition to your family!! I'm looking forward to coming for a cuddle soon!

Signing off for now!

Xxxx